Yesterday's pre-op was long but went really well. We saw the Cardio Surgeon, Cardiologist, Life Care Specialist, a ton of nurses, the Research team, lab techs...too many people to count :)
John did really well. Our Cardiologist gave us great re-assurance yesterday and we feel even better than we did before.
We will give you the quick version : We did Vitals, Weight, Height, Blood Pressure, Heart Rate, EKG, temperature - all that. X-rays of the chest (John was quite thrilled that every time they "took a picture" they let him run back and see what his insides looked like) He loved that part. Blood work went well. He just cried at the start but once she got the butterfly in he did great! Never cried again - took four tubes and got a band aid.
We agreed to be a part of 3 research projects so that hopefully some day other kiddos can benefit from John's experience. Those projects in no way alter his care or procedures. Just a couple extra steps that will some day help some one else!
The Cardiologist said there is only a 5% chance of any risk being small to grand. But he expects John to have a full recovery as he has the last 7 times he has been under.
John got to see an ICU unit - he said he already knew everything else - and well we do :) I tease we have our own wing and parking spot - but even the genetic researchers thought we should:)
That's all for now. We have everything ready - I just need to pack and we will go in on Monday.
We truly appreciate all the prayers and thoughts you all send up our way. We are blessed to have such wonderful family and friends.
May God bless each of you as you have blessed our lives.
Love,
Angela and Thomas
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