We are just hours away and Aunt Bobbie said I need to go to bed :) So I will go! A big thank you goes to everyone for their wonderful support and love. We could not do this without you all. Without asking I already know that your prayers are going before us and with us tomorrow.
With Love~ Angela
Sunday, September 28, 2008
Friday, September 26, 2008
Pre-Op
Yesterday's pre-op was long but went really well. We saw the Cardio Surgeon, Cardiologist, Life Care Specialist, a ton of nurses, the Research team, lab techs...too many people to count :)
John did really well. Our Cardiologist gave us great re-assurance yesterday and we feel even better than we did before.
We will give you the quick version : We did Vitals, Weight, Height, Blood Pressure, Heart Rate, EKG, temperature - all that. X-rays of the chest (John was quite thrilled that every time they "took a picture" they let him run back and see what his insides looked like) He loved that part. Blood work went well. He just cried at the start but once she got the butterfly in he did great! Never cried again - took four tubes and got a band aid.
We agreed to be a part of 3 research projects so that hopefully some day other kiddos can benefit from John's experience. Those projects in no way alter his care or procedures. Just a couple extra steps that will some day help some one else!
The Cardiologist said there is only a 5% chance of any risk being small to grand. But he expects John to have a full recovery as he has the last 7 times he has been under.
John got to see an ICU unit - he said he already knew everything else - and well we do :) I tease we have our own wing and parking spot - but even the genetic researchers thought we should:)
That's all for now. We have everything ready - I just need to pack and we will go in on Monday.
We truly appreciate all the prayers and thoughts you all send up our way. We are blessed to have such wonderful family and friends.
May God bless each of you as you have blessed our lives.
Love,
Angela and Thomas
John did really well. Our Cardiologist gave us great re-assurance yesterday and we feel even better than we did before.
We will give you the quick version : We did Vitals, Weight, Height, Blood Pressure, Heart Rate, EKG, temperature - all that. X-rays of the chest (John was quite thrilled that every time they "took a picture" they let him run back and see what his insides looked like) He loved that part. Blood work went well. He just cried at the start but once she got the butterfly in he did great! Never cried again - took four tubes and got a band aid.
We agreed to be a part of 3 research projects so that hopefully some day other kiddos can benefit from John's experience. Those projects in no way alter his care or procedures. Just a couple extra steps that will some day help some one else!
The Cardiologist said there is only a 5% chance of any risk being small to grand. But he expects John to have a full recovery as he has the last 7 times he has been under.
John got to see an ICU unit - he said he already knew everything else - and well we do :) I tease we have our own wing and parking spot - but even the genetic researchers thought we should:)
That's all for now. We have everything ready - I just need to pack and we will go in on Monday.
We truly appreciate all the prayers and thoughts you all send up our way. We are blessed to have such wonderful family and friends.
May God bless each of you as you have blessed our lives.
Love,
Angela and Thomas
Camo Sunday
Camo Sunday was such a hit with John. He just loved it. He thinks we should do that every Sunday. We felt so surround by love and support. We thank everyone who wore Camo on Sunday - even those who were not at FUMC. Below are some pictures I took - not all great but just to show even all the kids wore camo too.
Tuesday, September 23, 2008
Surgery Rescheduled
I have lots more to update and write but for right now I will just say that we received a phone call this evening and they have rescheduled John's surgery for Monday the 29th. More to follow tomorrow when I have more time.
Love and God's Blessings to all~Angela
Love and God's Blessings to all~Angela
Thursday, September 18, 2008
Update from Surgeon
We went in Monday to see the surgeon. John had one question - what is the deal with PJ's. He wanted to know if he could where over the head or if he needed the button up kind. She said button up. So John now needs me to go find 2 pair of Camo gunnerman PJ's so that he and Caleb can have them. So I will :) His other was not a question but a comment - those of you who know my Daddy think about him as you read this :
John says " So here is my menu - Cereal - fruitloops for dinner, biscuits and bacon for breakfast and I know the deal with the popcorn (which is low salt) so I will have M&M's for snack." She then ask what about lunch to which he replys - "I will figure that out when I get there."
For those of you who don't my Daddy He even ask the day Tom and I got engaged what we would eating at the reception - that is important to him and John - what exactly is on the menu :) Apples never fall far from the tree.
On the serious side - she went over the risk which I will not type so that I do not go over them in my head again. As Tom says that was 2 minutes of an hour long appointment - we will focus on what was said the other 58. And that was that they expect him to do well. The surgery will last between 6-8 hours. He will be in ICU until Sunday and then in a regular room with going home hopefully Wednsday. We are prepared for longer but pray they are right. He will need blood - we will get that from the American Red Cross General Fund. We thank all of our family and friends for all those trips you have made in the past and those you will make to donate blood so that children like John have the gift of life. Your blood really does save someones life. And we are grateful for it! He not only has a Sinus Venosus ASD but anomalous pulmonary veins. HE has three that will need to be repaired and re-routed. So we pray for their steady hands.
So the schedule for now that we will leave all of you with is:
Sept 25th
8:30-2pm Pre-Op: Which will include all the things I posted last time - blood work, urine sample, chest x-ray, ekg, echo, and meet with the team.
He will come home with us that day.
Sept 26th -
6:30 admittance
8am - Surgery - so they put him under sometime between those times.
We pray surgery is over around 4pm. And then he will be in ICU. We will update more then.
We have many who ask that they have that so they can pray specifically at those times for those needs.
We love you all,
Angela and Thomas
John says " So here is my menu - Cereal - fruitloops for dinner, biscuits and bacon for breakfast and I know the deal with the popcorn (which is low salt) so I will have M&M's for snack." She then ask what about lunch to which he replys - "I will figure that out when I get there."
For those of you who don't my Daddy He even ask the day Tom and I got engaged what we would eating at the reception - that is important to him and John - what exactly is on the menu :) Apples never fall far from the tree.
On the serious side - she went over the risk which I will not type so that I do not go over them in my head again. As Tom says that was 2 minutes of an hour long appointment - we will focus on what was said the other 58. And that was that they expect him to do well. The surgery will last between 6-8 hours. He will be in ICU until Sunday and then in a regular room with going home hopefully Wednsday. We are prepared for longer but pray they are right. He will need blood - we will get that from the American Red Cross General Fund. We thank all of our family and friends for all those trips you have made in the past and those you will make to donate blood so that children like John have the gift of life. Your blood really does save someones life. And we are grateful for it! He not only has a Sinus Venosus ASD but anomalous pulmonary veins. HE has three that will need to be repaired and re-routed. So we pray for their steady hands.
So the schedule for now that we will leave all of you with is:
Sept 25th
8:30-2pm Pre-Op: Which will include all the things I posted last time - blood work, urine sample, chest x-ray, ekg, echo, and meet with the team.
He will come home with us that day.
Sept 26th -
6:30 admittance
8am - Surgery - so they put him under sometime between those times.
We pray surgery is over around 4pm. And then he will be in ICU. We will update more then.
We have many who ask that they have that so they can pray specifically at those times for those needs.
We love you all,
Angela and Thomas
Sunday, September 14, 2008
Surgeon's Appointment
Just wanted everyone to know we will be meeting with the surgeon tomorrow at 1pm with John to go over any last minute questions and details we need to know. We will blog tomorrow night with lots of new info including a time line - for those of you who would like to know approx. when we will be doing what.
Anglea
Anglea
Camo day at FUMC
Just wanted everyone to know that our Sunday School class at Franklin FUMC has made next Sunday, September 21st Wear your Gunnerman Clothes to Church Day. Well that's what John and Caleb call Camo anything - Gunnerman clothes :) So everyone at FUMC and anyone who wants to can wear their camo on Sunday. John is so excited. That is his last Sunday at church until after November 10th. This idea came from Rachel Williamson who by the way sports great Gunnerman pants! We love you Rachel and are so blessed to have you in our lives. We thank you for initiating official wear your Gunnerman pants to church day. Oh and we did tell Pastor Lynn leaving church today that our class was doing that so he does not think that we all went duck hunting before church or that we were on some kind of a war path mission in church :)
In Chist Love,
Angela
In Chist Love,
Angela
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